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Teen with rare genetic disorder died due to brain bleed suffered in fall after epileptic seizure, inquest hears
An inquest into the girl’s death at Dublin District Coroner’s Court on Monday heard that she was diagnosed with a previously unknown rare genetic disorder – KBG Syndrome – while tests were being ...
Istead Rise mum sets up fundraiser to transform epilepsy care after son’s sudden death
A mum who lost her son suddenly is raising money to implement new technology to improve epilepsy care across the country.