Apert syndrome, also known as acrocephalosyndactyly type 1 (ACS1), is a rare genetic disorder that occurs when the bones in the skull fuse together sooner than normal. This prevents the head from ...

A woman with a rare genetic disorder called Apert syndrome turned an ordinary treadmill run into an extraordinary 26.2-mile ...

Child born with bulging eyes and webbed fingers thanks to rare Apert syndrome Ellen Scott Published July 19, 2019 10:18am Updated July 19, 2019 10:20am ...

A BRAVE six-year-old boy whose head grew to double its normal size is now enjoying a new lease of life thanks to surgery to create more space for his brain to grow. Daire Flanagan, from Belfast, No… ...

For the mother of a boy born with Apert syndrome, going home to Klawock, Alaska, has given her son a chance and the care he needs for a normal life. In Alaska village, a Native mother and ...

It already had. 'Kaiden is so brave' Kaiden, who turned 7 on Oct. 24, was born with Apert Syndrome, a rare craniofacial condition in which the bones in the middle of his face grow more slowly than ...

She was born in 1968 with Apert syndrome, which causes the fusion of bones in the feet, hands and skull. At just days old, doctors said she wouldn’t live a normal life.

Now, at two years old, Mirlee Janice Ramirez and her beautiful smile show how far they've come since KENS 5's Sarah Forgany first interviewed her mother in 2022.

LOUISVILLE, Ky. (WDRB) -- He's only 9 years old, but a Prospect boy with a rare disease has already endured more than most of us do in a lifetime. Aiden Skees was born with Apert Syndrome, a ...

A second annual 5K for Apert syndrome awareness is set for late January in Winston-Salem. They brought attention to Apert syndrome. At the next 5K, the Elliott family aims higher.